This resource explains the story of a boy who was diagnosed with Leukodystrophy at 10 weeks old. He was told he would not live past 3 years old. He has survived his initial prognosis by more than two decades. This resource raises awareness about this rare disease and offers a place to donate to support and help children with disabilities and their families.
Who it serves (ages, diagnoses, etc.)
This resource serves children or familes with children who have Leukodystrophy, a rare degenerative disorder with no treatment and no cure. This disease decreases a person’s lifespan tremendously.
Cost of the resource, including whether they take insurance or other payment sources
You can donate directly on this website with a credit card.