Family Voices Wants to Know What You Think
December 15, 2020 @ 3:00 pm - 4:15 pm
FAMILY VOICES WANTS TO KNOW WHAT YOU THINK
For some families, finding a diagnosis for their child is a long journey. They consult multiple specialists, their child undergo es many diagnostic tests, they incur high medical bills, and still don’t have answers.
What would it mean to have a program specifically designed to match families with world class multidisciplinary clinical teams to
•Provide a comprehensive consultation
•Help obtain a diagnosis, and
•Even if unable to find a diagnosis, develop an improved plan of care
Families Voices is convening a focus group to understand how families would like to learn about a program like this.
•The focus group will be virtual, in English, and will last 75 minutes.
•Participants will receive a $125 stipend in recognition of their time.
•The information learned during the focus group will be shared with an anonymous funder. Your name will not be shared or reported.
To be eligible to participate, you must be a parent/caregiver:
•Of a child younger than 18 years of age with a high degree of medical complexity who has had an undiagnosed condition
•Who has consulted multiple specialists and/or health systems to help diagnose and manage their child’s health
The Focus Group will take place on : Tues., Dec. 15, 2020 from 3 to 4:15 ET pm; 2 to 3:15 pm CT; 1 to 2:15 pm PT; 10 to 11:15 am HT .